The Unusual Suspects: rare disease in everyday medicine
The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February! The M4RD Annual Symposium has been a popular event in the rare disease […]
10 events found.
Rare Diseases
Events
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LIVE STREAM
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Lessons learned from the COVID-19 pandemic: Clinical trials and drug development in rare disease
ONLINEThis episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites […]
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Lessons learned from the COVID-19 pandemic: Looking to the future with The UK Rare Diseases Framework
ONLINEJointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the […]
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Beyond the Student Voice Prize: Continuing your involvement in rare disease
ONLINELearn how you can further your interest and get more involved in the world of rare diseases to benefit both yourself and the rare community The Student Voice Prize is […]
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Online workshop: Understanding access and reimbursement
ONLINEGetting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research […]
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Understanding Rare Disease: Communicating with Patients
Sign up to learn about the role of communication in rare disease from those affected directly, in an interactive FREE virtual event! About this event The event will kick off […]
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The genetics of intellectual disability: Episode 15
LIVE STREAMThis webinar is part of the popular Genetics of webinar series and will provide an interesting update on the genetic origins of intellectual disability, as well as explore what challenges remain in […]
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Hypermobility syndrome: A practical guide to assessment, management and care
Royal Society of Medicine 1 Wimpole Street, London, United KingdomJoin the RSM at this multidisciplinary event which will provide a valuable overview and a broader understanding of hypermobility syndrome and the care of these patients. Experts in their field […]
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11th European Conference on Rare Disease & Orphan Products (ECRD)
ONLINEThe European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place. ECRD 2022 will take […]
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BBS UK Annual Conference 2022
Hilton Hotel, Northampton 100 Watering Lane, Collingtree, United KingdomThis highly-anticipated event provides the unique opportunity to learn about the latest research, treatments, and day to day management of BBS, network with like-minded professionals and more importantly, learn from […]