Afternoon Tea with the Childhood Tumour Trust
Want to learn more about Neurofibromatosis Type 1, with a focus on diagnosis and care? Come along to Danesfield House at 1.30pm on Friday 6th August for Afternoon Tea with […]
10 events found.
Events
-
-
Danesfield House Henley Road, Marlow, Buckinghamshire, United Kingdom
-
-
Wolfram Syndrome UK and WellChild International Virtual Conference (Part 1)
ONLINERegister for your place on this international virtual conference hosted by Wolfram Syndrome UK and WellChild. The 10th WS conference will again be held as virtual events over 2 Saturdays […]
-
Findings from the NCARDRS rare disease collection discovery phase
ONLINEThis webinar is about the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) which is part of NDRS As part of the National Disease Registration service (NDRS) webinar series, […]
-
Wolfram Syndrome UK and WellChild International Virtual Conference (Part 2)
ONLINERegister for your place on this international virtual conference hosted by Wolfram Syndrome UK and WellChild. The 10th WS conference will again be held as virtual events over 2 Saturdays […]
-
-
RAREsummit21
ONLINEHear from and engage with a range of stakeholders pioneering change across the rare disease landscape... CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, […]
Free – £158.39 -
NORD Breakthrough Summit
ONLINENORD Rare Diseases and Orphan Products Breakthrough Summit is back on 18 & 19 October 2021 offering a two-day virtual programme. The summit will discuss the latest updates on: rare disease diagnosis and research genetics and genomics drug development and patient engagement FDA oversight A limited number of free passes may be available to patient […]
-
Learning together: The importance of patient partnership
ONLINEJoin the RSM to reflect on the principles of patient partnership and patient care in this afternoon prize meeting. Dr Bola Owolabi, Director - Health Inequalities NHS England and NHS […]
-
-
Rare disease education: insights on what clinicians know, want and need
ONLINESAVE THE DATE An opportunity for clinicians and rare disease patient advocacy groups/advocates to come along to a lunchtime webinar with Medscape to hear about their large physician survey on […]
-
Genomic ophthalmology: Diagnostics and therapeutics
ONLINEThis webinar will provide insights and updates on ophthalmic genetics to ophthalmologists. Specialist speakers will educate delegates on how to order genetic testing, how whole genome sequencing will improve patient […]
-
Vasculitis: From cell to service
WebinarThis two-day free webinar is composed of a multi-professional faculty reflecting the multi-systemic nature of vasculitis, comprehensive updates on key UKIVAS group activities, and research and clinical updates in the […]