Reflections on the Medics for Rare Disease Annual Strategy Meeting
Coming Together to Shape the Future of Rare Disease Care I recently became a Trustee for Medics for rare Disease and on 13 and 14 June 2025 the Medics for […]
Eleanor Churchill
About Eleanor Churchill
Posts by Eleanor Churchill:
Paediatric Academic Day 2025: Health inequities in the spotlight!
Paediatric Academic Day 2025: Health inequities in the spotlight! At Medics for Rare Disease we have a vision of equitable healthcare for everybody, regardless of the prevalence of their health […]
Meet Megan Pullein – Research Project Manager
Hello, I’m Megan Pullein. I am excited to join Medics for Rare Disease as a Research Project Manager, working on Medics for Rare contribution to the RDI-Lancet Commission on Rare […]
A landmark resolution on rare disease
Last week a landmark resolution on rare disease was adopted at the 78th World Health Assembly. This marks a significant step toward global health equity and inclusion. The Resolution was […]
How can the NHS better serve you?
Medics for Rare Disease has been tasked with making recommendations to the Department of Health and Social Care about ‘healthcare professional awareness’ of rare disease. We need your input and […]
#ShowYourStripes Online Gallery is LIVE – Find your photo!
5th March 2025 A huge THANK YOU to all of those who took part in the #ShowYourStripes for Rare Disease Day campaign, last week. We are delighted to announce that […]
Rare Disease Day 2025 Gallery
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and we can’t thank you […]
Calling on ALL healthcare teams – show your stripes for Rare Disease Day!
Calling all healthcare professionals… dig out your stripey socks and get ready to ‘show your stripes’ as we approach Rare Disease Day on 28th February. Medics for Rare Disease is […]
We’re Hiring! Apply for our Training Programmes Manager Position
ABOUT M4RD M4RD exists to provide education and training targeted at medical professionals, enabling them to improve diagnosis and care of people living with rare conditions. An estimated 3.5 million […]
Words Matter by Emily Livesey
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]