Lived Experience Archives - Medics For Rare Disease

Lived Experience

26th March 2026

Too Young, Too Rare: What My PBC Diagnosis Taught Me About Flexibility, Complexity, and Care

Taise Campbell Lived Experience, Patient Story, Rare Disease Autoimmune Disease, Chronic Liver Disease, patient advocacy, Primary Biliary Cholangitis, Rare Disease Awareness, rare diseases, Young Adults & Chronic Illness 0

Rare diseases are often defined as conditions affecting fewer than 1 in 2,000 people. Individually they are uncommon, but collectively they affect millions of people worldwide. Despite this, many people […]