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2 item(s) found

Making the Unseen Seen: rare disease and the lessons learned from the COVID-19 pandemic

Posted 4 years ago

At the beginning of the COVID-19 pandemic of early 2020, a group of concerned advocates...

Journals and Articles / 1591 views / Popular

A new approach to shortening the diagnostic odyssey

Posted 5 years ago

People living with rare disease often face a diagnostic odyssey, typically waiting years for a...

Journals and Articles / 2306 views / Popular

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Recent Posts

BBC Spotlights Rare Disease Voices: Medics for Rare Disease Ambassadors Making Headlines
BBC Puts a Spotlight on Rare Disease — Ambassador Charlotte Chapman-Hart Tells Her Story
Turning Data into Change: Reflections from the NHS RHO Launch of the Sickle Cell Comparative Review
Our ambassador annual meet up!
Reflections on the Medics for Rare Disease Annual Strategy Meeting

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Medics4RareDiseases Ltd is a Charitable Incorporated Organisation (CIO) registered in England & Wales, Registered Charity Number 1183996. Our registered address is: c/o Analogue Wonderland, Unit 12 Treadaway Technical Centre, Treadaway Hill, Loudwater, High Wycombe, HP10 9RS.

M4RD is currently funded by donations and company sponsorship with unrestricted grants. M4RD does not endorse any companies or products. M4RD is operated independently from these companies and they have no editorial control over M4RD’s content or activities. To find out more click here.

Please note that M4RD does not provide any clinical services and staff are not able to assist in making a diagnosis or clinical referrals. The information on this website is provided for driving awareness and should not be interpreted as or a substitute for professional medical advice.

Recent Posts

BBC Spotlights Rare Disease Voices: Medics for Rare Disease Ambassadors Making Headlines
16th September 2025
BBC Puts a Spotlight on Rare Disease — Ambassador Charlotte Chapman-Hart Tells Her Story
19th August 2025
Turning Data into Change: Reflections from the NHS RHO Launch of the Sickle Cell Comparative Review
12th August 2025

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