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Making the Unseen Seen: rare disease and the lessons learned from the COVID-19 pandemic

Posted 4 years ago

At the beginning of the COVID-19 pandemic of early 2020, a group of concerned advocates...

Journals and Articles / 1493 views / Popular

A new approach to shortening the diagnostic odyssey

Posted 5 years ago

People living with rare disease often face a diagnostic odyssey, typically waiting years for a...

Journals and Articles / 2185 views / Popular

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A landmark resolution on rare disease
How can the NHS better serve you?
#ShowYourStripes Online Gallery is LIVE – Find your photo!
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Calling on ALL healthcare teams – show your stripes for Rare Disease Day!

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Medics4RareDiseases Ltd is a Charitable Incorporated Organisation (CIO) registered in England & Wales, Registered Charity Number 1183996. Our registered address is: c/o Analogue Wonderland, Unit 12 Treadaway Technical Centre, Treadaway Hill, Loudwater, High Wycombe, HP10 9RS.

M4RD is currently funded by donations and company sponsorship with unrestricted grants. M4RD does not endorse any companies or products. M4RD is operated independently from these companies and they have no editorial control over M4RD’s content or activities. To find out more click here.

Please note that M4RD does not provide any clinical services and staff are not able to assist in making a diagnosis or clinical referrals. The information on this website is provided for driving awareness and should not be interpreted as or a substitute for professional medical advice.

Recent Posts

A landmark resolution on rare disease
27th May 2025
How can the NHS better serve you?
27th May 2025
#ShowYourStripes Online Gallery is LIVE – Find your photo!
5th March 2025

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