rare disease advocacy Archives - Medics For Rare Disease

rare disease advocacy

9th January 2026

Medics for Rare Disease Ambassador Rare 101: Train the Trainer

Jo McPherson Ambassador Workshop, Healthcare Education, Medical Student Training, Medical Training, Online Training, Rare Disease 101, rare disease advocacy, Rare Disease Awareness, Rare Disease Session, Rare Disease Training

Learn how to deliver engaging Rare Disease 101 talks with tips, resources, and insights from experienced ambassadors. Thinking of running a Rare 101 training session in 2026? Whether you’re planning […]

9th January 2026

Medics for Rare Disease Ambassador & Alumni Brew

Jo McPherson 2026 events, Ambassador program, Community event, Medics for Rare Disease, Networking, Online meetup, rare disease, rare disease advocacy, Virtual event, Volunteer ambassadors

Kick off the New Year with a cuppa and a catch-up at our New Year Ambassador Brew ☕ This relaxed, virtual get-together is a chance for our Ambassador community to […]

18th November 2025

Dr Lucy McKay on Rare Disease Advocacy: Insights from the RDI-Lancet Global Commission

Megan Pullein interview rare disease advocacy, RDI-Lancet Global Commission

Our very own CEO, Dr Lucy Mckay was recently interviewed by Rare Disease International (RDI) about her role as commissioner on the RDI-Lancet Global Commission on Rare Disease (LCRD). Read […]