Dare To Think Rare
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#DareToThinkRare and Save Lives

The tragic death of Elliot reminds us that knowing about rare diseases doesn’t just improve the patient journey but it can save lives in emergency situations. Find out more about Elliot and urea cycle disorders.

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Lucy McKay
The M4RD Red Flags Survey Launches Today!

Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of the survey is to find out what different rare diseases have in common during the time before diagnosis, a period often called ‘the diagnostic odyssey’. We need all UK based patient groups to take part. Read more to find out how…

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When Dan Met Lucy on Rare Disease Day 2018

VIDEO: Dan Jeffries, owner of two rare diseases and author of 'Me, Myself & Eye', interviewed M4RD Founder Lucy McKay. Watch the video to hear Dan's interesting story of being diagnosed during an OSCE and to find out what M4RD is all about from the zebra's mouth.


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