Words Matter by Emily Livesey
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
Eleanor Churchill
About Eleanor Churchill
Posts by Eleanor Churchill:
Gallery: The Unusual Suspects – Rare Disease in Everyday Medicine
On the 21st February our annual event The Unusual Suspects – Rare Disease in Everyday Medicine took place at The Royal Society of Medicine. The aim of the meeting was […]
Gallery: Rare Disease Day 2024
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and we can’t thank you […]
Get Ready to #ShowYourStripes for Rare Disease Day – 29th February!
Join Medics4RareDiseases (M4RD) and #ShowYourStripes for Rare Disease Day on 29th February, the rarest day of the year. Getting involved is easy, simply dig out some stripey socks, pop them […]
Q&A with Anneliese Ng – Runner up of 2019’s Student Voice Prize
With just under two weeks until this year’s Student Voice Prize (SVP) closes, we’re making sure you guys are reminded about this fantastic opportunity and why you should get involved […]
Have YOU heard of Kabuki syndrome?
This week, Mystery Monday focussed on Kabuki syndrome with thanks to the Kabuki syndrome foundation for the fantastic resources. 23 October is Kabuki syndrome awareness day! Kabuki syndrome is a […]
The Rare Disease Podcast for Medics: Season 4 Round Up
We’ve now brought Season 4 of The Rare Disease Podcast for Medics to a close and what a season it was! We’ve had some incredible guests and have discovered so […]
7 Ways you can gear up for Rare Disease Day on February 28th 2023
Rare disease day highlights the impact of rare disease on millions of people all around the world. There’s loads of ways you can get involved to support this incredible day, […]
#showyourstripes for Rare Disease Day!
Rare Diseases affect 3.5 million people in the UK. People with rare conditions take an average of FIVE years to reach a diagnosis. They often experience diagnostic delay because healthcare […]