It’s not ‘just hypermobility’
Ehlers Danlos Syndrome (EDS) refers to a group of conditions that affects connective tissues, which includes skin, bones, blood vessels and many other organs. Symptoms of Ehlers Danlos Syndrome can […]
Podcast
A REAL Rare Rollercoaster – from Paramedic to Patient
All aboard this ride! This week, on The Rare Disease Podcast 4 Medics, I had the honor to speak to a paramedic, turned patient. Marie was a practicing student paramedic […]
Fifty Years For a Fibular Hemimelia Diagnosis
Fibular Hemimelia is a rare congenital condition characterised by the complete or partial absence of the fibula bone. It is the same condition which afflicted athletes Aimee Mullins and Oscar […]
Tune in now to the Rare Disease Podcast 4 Medics
The Rare Disease Podcast 4 Medics has launched! Each week we will bring you interviews with people from across the rare disease and medical world. We will be looking at […]