Bardet-Biedl syndrome Archives - Medics For Rare Disease

Bardet-Biedl syndrome

24th June 2022

BBS UK Annual Conference 2022

Jo McPherson Annual Conference, Bardet-Biedl syndrome, HCP, rare disease, research 0

This highly-anticipated event provides the unique opportunity to learn about the latest research, treatments, and day to day management of BBS, network with like-minded professionals and more importantly, learn from […]

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15th May 2020

Patient Registry for Bardet-Biedl Syndrome

Jo McPherson daretothinkrare, disease, medicalstudent Bardet-Biedl syndrome, Data, patient registry, rare genetic condition, UCL

We’re working with UCL to find someone to help develop a patient registry for BBS UCL are setting up a professional registry for people in the UK with the rare genetic condition […]