Our time at the European Parliament by Nadine Jefferies
Hello! I’m Nadine, Executive Assistant at Medics4RareDiseases, and I’m thrilled to tell you about my trip to Brussels with CEO Lucy McKay. On the 8th February we visited the European […]
rare disease
Shining a Light on Silver-Russell Syndrome (SRS) on Rare Disease Day
Join us for this ONLINE event on Rare Disease Day 2023, find out about how rare genetic conditions, like SRS, are diagnosed and hear about what it’s like to live […]
Living Rare Forum
Hosted at the Renaissance Downtown Hotel, the rare disease community will come together in Washington DC for a day of learning, networking and fun! Hear real stories from the community […]
From Genetics Undergraduate to Paediatric Registrar
by Dr Alexandra Downes, Paediatric Registrar My Rare Disease journey began in the second year of my Human Genetics degree at University College London. I still remember to this day […]
#showyourstripes for Rare Disease Day!
Rare Diseases affect 3.5 million people in the UK. People with rare conditions take an average of FIVE years to reach a diagnosis. They often experience diagnostic delay because healthcare […]
The Dangers of ‘Optimism Bias’
Dr Lauren Ferretti is a paediatric registrar in London with a life-long commitment to charity fundraising and an interest in genetics and whole genome sequencing. Through working with M4RD as […]
Large Vessel Vasculitis
Dr Mariam Al-Attar is currently a Internal Medical Trainee doctor at Northern Care Alliance. She graduated from Lancaster University where she held a number of positions that make her qualified […]
#DareToWriteRare – The Student Voice Prize returns for its 9th year
Competition now open with three new questions The Student Voice Prize is an annual and international essay competition brought to you by M4RD in collaboration with Beacon, with a focus on raising the profile […]
Young People’s Genomics Café
Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Chromosomes! Dr Andrew Fry, Clinical Senior Lecturer in […]
Innovation Bootcamp in Rare Diseases 2022
The third edition of the Innovation Bootcamp in Rare Diseases (IBRD2022) congress in Brussel will be held on October 11th 2022. The target audience of this event includes all professionals […]