#DARE TO THINK RARE
Our Mission
We are driving an attitude change towards rare diseases amongst medical students and doctors in training.
With over 7000 rare diseases, it’s impossible to know about all of them. However it is possible for doctors to:
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Appreciate that rare diseases are collectively common
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Recognise the exceptional challenges faced by patients with rare diseases
M4RD provides education in the Rare Disease field for medical students and doctors in training. Our ultimate aim is to improve the patient-doctor relationship and speed up the journey to diagnosis.
1 in 17 people will be affected by a rare disease at some point in their lives Source: Rare Disease UK
Rare Disease 101
This is the first online module of its type. Rare Disease 101 is aimed at medical professionals with little prior knowledge in rare diseases. It consists of the basic principles of what rare disease is, how you may suspect a rare disease, challenges faced by those living with a rare disease and how to support them. Plus more!
LIVE NOW!
Looking for a Rare Disease Resource? Browse, search and contribute to our growing database. Visit the Resources menu above.
Posted 2 years ago by Jo McPherson
Neurofibromatosis type 1 (NF1) is a neurogenetic condition that approximately 1 in every 2,700 people...
Learning Resources / 746 views
DDX3X Support UK
PopularPosted 2 years ago by Maria Poole
DDX3X Support UK is a UK based information and support group for patients and families...
Patient Groups / UK / 1033 views
Posted 2 years ago by Lucy McKay
Abstract: This article presents an approach to "thinking genetically" in primary care. Busy practitioners often...
Journals and Articles / 778 views
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