#DARE TO THINK RARE
Our Mission
We are driving an attitude change towards rare diseases amongst medical students and doctors in training.
With over 7000 rare diseases, it’s impossible to know about all of them. However it is possible for doctors to:
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Appreciate that rare diseases are collectively common
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Recognise the exceptional challenges faced by patients with rare diseases
M4RD provides education and practical tools targeted at medical professionals, enabling them to reduce the diagnostic odyssey and improve the patient experience.
1 in 17 people will be affected by a rare disease at some point in their lives Source: Rare Disease UK
Rare Disease 101
This is the first online module of its type. Rare Disease 101 is aimed at medical professionals with little prior knowledge in rare diseases. It consists of the basic principles of what rare disease is, how you may suspect a rare disease, challenges faced by those living with a rare disease and how to support them. Plus more!
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Looking for a Rare Disease Resource? Browse, search and contribute to our growing database. Visit the Resources menu above.
Huntington's Disease Association exists to help people living with Huntington's disease to live a better...
Patient Groups / UK / 129 views
DEBRA was established in 1978 by Phyllis Hilton, whose daughter Debra had Epidermolysis Bullosa (EB),...
Patient Groups / UK / 10 views / New
Designed to provide easily accessible and up to date information for anyone affected by genetic,...
Patient Groups / 1018 views / Popular
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