#DARE TO THINK RARE
Our Mission
We are driving an attitude change towards rare diseases amongst medical students and doctors in training.
With over 7000 rare diseases, it’s impossible to know about all of them. However it is possible for doctors to:
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Appreciate that rare diseases are collectively common
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Recognise the exceptional challenges faced by patients with rare diseases
M4RD provides education in the Rare Disease field for medical students and doctors in training. Our ultimate aim is to improve the patient-doctor relationship and speed up the journey to diagnosis.
1 in 17 people will be affected by a rare disease at some point in their lives Source: Rare Disease UK
The Unusual Suspects: Rare Diseases in Everyday Medicine
Videos from this year’s symposium at The Royal Society of Medicine will be released weekly. Starting with Dr Richard Scott, Clinical Lead for Rare Disease at Genomics England and a Consultant in Clinical Genetics at Great Ormond Street Hospital.
Subscribe to M4RD to be updated on the next video release
Looking for a Rare Disease Resource? Browse, search and contribute to our growing database. Visit the Resources menu above.
33 item(s) found
Ataxia UK
PopularPosted 1 year ago by Emily Cutting
Ataxia is an umbrella term for a group of neurological disorders that affect balance, coordination...
Patient Groups / London / 423 views
Posted 10 months ago by Jo McPherson
Neurofibromatosis type 1 (NF1) is a neurogenetic condition that approximately 1 in every 2,700 people...
Learning Resources / 380 views
Posted 5 months ago by Jo McPherson
Designed to provide easily accessible and up to date information for anyone affected by genetic,...
Patient Groups / 209 views
Upcoming Events
Meet the Team
We’re a group of passionate people helping medics to dare to think rare.
Lucy McKay
CEO
Debra Fine
Treasurer
Tanya Collin-Histed
Trustee
Hannah Grant
Trustee
Chris France
Chair of Trustees