#DARE TO THINK RARE
Our Mission
We are driving an attitude change towards rare diseases amongst medical students and doctors in training.
With over 7000 rare diseases, it’s impossible to know about all of them. However it is possible for doctors to:
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Appreciate that rare diseases are collectively common
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Recognise the exceptional challenges faced by patients with rare diseases
M4RD provides education in the Rare Disease field for medical students and doctors in training. Our ultimate aim is to improve the patient-doctor relationship and speed up the journey to diagnosis.
1 in 17 people will be affected by a rare disease at some point in their lives Source: Rare Disease UK
The Unusual Suspects: Rare Diseases in Everyday Medicine
Videos from this year’s symposium at The Royal Society of Medicine will be released weekly. Starting with Dr Richard Scott, Clinical Lead for Rare Disease at Genomics England and a Consultant in Clinical Genetics at Great Ormond Street Hospital.
Subscribe to M4RD to be updated on the next video release
Looking for a Rare Disease Resource? Browse, search and contribute to our growing database. Visit the Resources menu above.
Posted 5 months ago by Lucy McKay
Abstract: The incidence of mental health disorders is significantly higher in individuals with a rare...
Journals and Articles / 145 views
1 Wimpole Street
PopularPosted 10 months ago by Lucy McKay
A great venue in central London to deliver an event, conference or meeting. Also the...
Ataxia UK
PopularPosted 8 months ago by Emily Cutting
Ataxia is an umbrella term for a group of neurological disorders that affect balance, coordination...
Patient Groups / London / 260 views
Beat SCAD
PopularPosted 9 months ago by Debbie Oliver
Beat SCAD is a patient-led charity that aims to support Spontaneous Coronary Artery Dissection (SCAD)...
Patient Groups / UK / 362 views
Behçet’s UK Medical Factsheets
PopularPosted 4 months ago by Tony Thornburn
Herewith the link to Behçet’s syndrome/disease Medical Factsheets, prepared by our leading clinicians: https://behcets.org.uk/information-for-patients/behcets-medical-factsheets/ The...
Factsheets / UK / 161 views
Posted 10 months ago by Lucy McKay
Childhood Tumour Trust (CTT) is a growing charity whose aim is to provide support for...
Patient Groups / UK / 298 views
