#DARE TO THINK RARE
Our Mission
We are driving an attitude change towards rare diseases amongst medical students and doctors in training.
With over 7000 rare diseases, it’s impossible to know about all of them. However it is possible for doctors to:
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Appreciate that rare diseases are collectively common
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Recognise the exceptional challenges faced by patients with rare diseases
M4RD provides education in the Rare Disease field for medical students and doctors in training. Our ultimate aim is to improve the patient-doctor relationship and speed up the journey to diagnosis.
1 in 17 people will be affected by a rare disease at some point in their lives Source: Rare Disease UK
Rare Disease 101
This is the first online module of its type. Rare Disease 101 is aimed at medical professionals with little prior knowledge in rare diseases. It consists of the basic principles of what rare disease is, how you may suspect a rare disease, challenges faced by those living with a rare disease and how to support them. Plus more!
LIVE NOW!
Looking for a Rare Disease Resource? Browse, search and contribute to our growing database. Visit the Resources menu above.
39 item(s) found
Wolfram Syndrome UK (WSUK)
PopularPosted 2 years ago by Tracy Lynch
We are the only charity and support group in the UK for individuals and families...
Patient Groups / UK / 716 views
Posted 1 year ago by Jo McPherson
Neurofibromatosis type 1 (NF1) is a neurogenetic condition that approximately 1 in every 2,700 people...
Learning Resources / 624 views
TRAPPED – an insight into two sisters’ struggle to access treatment for a rare genetic disease
PopularPosted 1 year ago by Lucy McKay
Abstract: Medical student training is largely focused on acquiring knowledge of diseases and their management,...
Journals and Articles / 538 views
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