Today the BBC featured our Ambassador Charlotte Chapman-Hart, sharing a powerful first‑hand account of life with a rare condition. In a candid interview with investigative reporter Nicola Gilroy, Charlotte described […]
I had the amazing opportunity to attend the National Organization for Rare Diseases (NORD) Breakthrough Summit taking place in Washington, DC, USA between 20-22nd of October this year to present […]
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
Apply to be an M4RD Ambassador today… This is the moment you’ve been waiting for! Our popular and successful Ambassador Programme is now open to new applications, giving you the […]
As a new clinical ambassador for M4RD, I eagerly anticipated the Unusual Suspects conference in London this year, and it certainly didn’t disappoint! Traveling from Chester donning my stripy socks, […]
We healthcare practitioners are privileged. Patients trust us with their stories, creating the space for us to participate in them. In my experience as a genetic counselling student, this is […]
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
This year, I was able to combine my role as an M4RD Clinical Ambassador with my position on the London School of Paediatrics Trainee’s Committee Education Subgroup to work together […]
M4RD’s Ambassadors come together for the first time In September 2022 we welcomed our new cohort of ambassadors for 2022/23 which included 10 Clinicians, 5 Medical Students and 4 Patient […]