Daring to Think Rare: Reflections on My First Year as an Ambassador
It’s the end of my first year as an MfRD Ambassador, and I had the pleasure of celebrating it with the incredible Lunch & Learn! On arrival, I was greeted […]
Ambassador
BBC Spotlights Rare Disease Voices: Medics for Rare Disease Ambassadors Making Headlines
Mainstream media doesn’t often feature rare conditions, but when it does, it makes an impact! Recently, two ambassadors from Medics for Rare Disease – Charlotte Chapman-Hart and Zainab Alani – […]
BBC Puts a Spotlight on Rare Disease — Ambassador Charlotte Chapman-Hart Tells Her Story
Today the BBC featured our Ambassador Charlotte Chapman-Hart, sharing a powerful first‑hand account of life with a rare condition. In a candid interview with investigative reporter Nicola Gilroy, Charlotte described […]
Turning Data into Change: Reflections from the NHS RHO Launch of the Sickle Cell Comparative Review
Launch at the House of Lords On 19th June 2025, I had the privilege of attending an important event at the House of Lords to mark World Sickle Cell Day. […]
Our ambassador annual meet up!
Last month was the Medics for Rare Disease Ambassador’s annual in-person meet up. Ambassadors came together from across the UK to share experiences and attend a number of workshops. Some […]
Attending NORD! (The National Organisation for Rare Diseases) by Agata Oliwa
I had the amazing opportunity to attend the National Organization for Rare Diseases (NORD) Breakthrough Summit taking place in Washington, DC, USA between 20-22nd of October this year to present […]
Beyond the Diagnosis: Mental Health and Rare Diseases
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
Lunch and Learn look-back by Leah Brooksbank and Corrinne Hepworth
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
Are you ready to become a Rare Disease Ambassador?
Apply to be an M4RD Ambassador today… This is the moment you’ve been waiting for! Our popular and successful Ambassador Programme is now open to new applications, giving you the […]
The Unusual Suspects – A Masterclass In Rare Disease Communication by John Bassett
As a new clinical ambassador for M4RD, I eagerly anticipated the Unusual Suspects conference in London this year, and it certainly didn’t disappoint! Traveling from Chester donning my stripy socks, […]