medicalstudent

15th June 2020

The rare disease patient journey in 2030

Jo McPherson conference, daretothinkrare, doctor, event, medicalstudent, raredisease, Uncategorised ECRD, Eurordis, patient journey

Thanks to the wonders of modern technology and an amazingly powerful online platform #ECRD2020 took place virtually on 14th & 15th May. The conference was organised to take place in […]

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15th May 2020

Patient Registry for Bardet-Biedl Syndrome

Jo McPherson daretothinkrare, disease, medicalstudent Bardet-Biedl syndrome, Data, patient registry, rare genetic condition, UCL

We’re working with UCL to find someone to help develop a patient registry for BBS UCL are setting up a professional registry for people in the UK with the rare genetic condition […]

17th March 2020

Student Voice Prize Essays Published

Jo McPherson competition, daretothinkrare, findacure, medicalstudent, raredisease

Student Voice Prize 2019 Last month the winning essays from the Student Voice Prize 2019 were published in celebration of Rare Disease Day 2020! You can read all of them […]

21st January 2020

Winner of Student Voice Prize 2019 Announced

Jo McPherson competition, daretothinkrare, findacure, medicalstudent, patient, raredisease

Medical Students asked to “Think Rare” Rare diseases affect approximately 350 million people worldwide, yet they are some of the most difficult conditions to diagnose. Despite the number of people […]

15th July 2019

Childhood Tumour Trust Appoints New Medical Advisory Board Members

Jo McPherson Ambassador, conference, medicalstudent, raredisease medical student. medical advisory board, neurofibromatosis, NF1, rare disease, volunteer

Earlier this year M4RD helped Childhood Tumour Trust (CTT) search for a doctor to attend the International Neurofibromatosis Conference in San Francisco this September. The successful applicant would also join CTT’s medical […]