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Posted 6 days ago

Autoinflammatory UK is the UK's oldest and largest patient-run safe patient support group for patients...

 Patient Groups /  UK / 17 views / New

Posted 2 weeks ago

The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of...

 Patient Groups /  UK / 26 views / New

Posted 2 weeks ago

SOFT UK was founded in 1990 by Christine Rose and Jenny Robbins. As mothers, they...

 Patient Groups /  UK / 12 views / New

Posted 2 weeks ago

ALK-positive lung cancer is a relatively rare form of lung cancer caused by the abnormal...

 Patient Groups /  UK / 16 views / New

Posted 2 weeks ago

Whether you’re directly affected by Aicardi-Goutières syndrome, are interested to know more about the condition...

 Patient Groups /  UK / 15 views / New

Posted 2 weeks ago

The TAPS Support Foundation is a registered charity dedicated to changing the way monochorionic twin...

 Patient Groups /  UK / 17 views / New

Posted 2 weeks ago

Primary Ciliary Dyskinesia (PCD) is a rare genetic disease affecting 1 in 15,000 people in...

 Patient Groups /  UK / 20 views / New

Posted 2 weeks ago

Supporting families affected by Chronic Granulomatous Disorder (CGD) in the UK. In March 2022 M4RD...

 Patient Groups /  UK / 13 views / New

Posted 2 weeks ago

Behçet’s UK represents all Behçet’s patients in the UK including those yet to be diagnosed. We...

 Patient Groups /  UK / 18 views / New

Posted 2 weeks ago

The Pituitary Foundation is a national support and information organisation for pituitary patients, their families,...

 Patient Groups /  UK / 13 views / New

Posted 2 weeks ago

myaware provides expert support and advice for people affected by myasthenia. In February 2022 M4RD...

 Patient Groups / 14 views / New

Posted 2 weeks ago

Supporting patients & families living with PIK3CA Related Overgrowth Spectrum (PROS). In January 2022 M4RD...

 Patient Groups /  UK / 18 views / New

Posted 2 weeks ago

The CATS Foundation supports families affected by Tay-Sachs and Sandhoff disease. The CATS Foundation was...

 Patient Groups /  UK / 14 views / New

Posted 2 weeks ago

Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed...

 Patient Groups /  UK / 20 views / New

Posted 2 weeks ago

Birt-Hogg-Dubé syndrome is an inherited condition, characterised by the development of fibrofolliculomas (benign skin tumours),...

 Patient Groups /  UK / 25 views / New

Posted 2 weeks ago

Dedicated to improving the lives of those affected by Dravet Syndrome through support, education and...

 Patient Groups /  UK / 15 views / New

Posted 2 weeks ago

Ataxia UK is the leading charity in the UK that supports people affected by any...

 Patient Groups /  UK / 18 views / New

Posted 2 weeks ago

Wolfram Syndrome UK (WSUK) is the only charity and website in the UK for this...

 Patient Groups /  UK / 14 views / New

Posted 2 weeks ago

Addison’s Disease is a rare endocrine condition where the adrenal glands cease to function, so that your...

 Patient Groups /  UK / 19 views / New

Posted 3 months ago

Alex TLC is a trusted and experienced organisation offering support and information for all those...

 Patient Groups /  London / 110 views

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