How can the NHS better serve you?
Medics for Rare Disease has been tasked with making recommendations to the Department of Health and Social Care about ‘healthcare professional awareness’ of rare disease. We need your input and […]
conference
Attending NORD! (The National Organisation for Rare Diseases) by Agata Oliwa
I had the amazing opportunity to attend the National Organization for Rare Diseases (NORD) Breakthrough Summit taking place in Washington, DC, USA between 20-22nd of October this year to present […]
Gallery: First, do no harm – Reflections on a rare bone disease
Medics4RareDiseases and FOP Friends, in collaboration with the Hunterian Museum at the Royal College of Surgeons of England, hosted an evening reception for healthcare professionals, examining the contributions of patients […]
Gallery: The Unusual Suspects – Rare Disease in Everyday Medicine
On the 21st February our annual event The Unusual Suspects – Rare Disease in Everyday Medicine took place at The Royal Society of Medicine. The aim of the meeting was […]
Register now for M4RD’s annual symposium!
Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]
M4RD’s Ambassadors come together for the first time
M4RD’s Ambassadors come together for the first time In September 2022 we welcomed our new cohort of ambassadors for 2022/23 which included 10 Clinicians, 5 Medical Students and 4 Patient […]
Look-back – The Unusual Suspects: Rare Disease in Everyday Medicine
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
The Importance of Centering the Patient by Nadine Jefferies
How can pharmaceutical companies ensure that patients are actively involved at every stage ofdrug development? Last week I attended the Patient Centricity & Engagement conference in London to find out […]
Advanced Therapies Conference at the ExCel in London by Nadine Jefferies
Hello, Nadine here, I’m back again! This time it’s to talk about rare disease policy. This month I attended Europe’s largest cell and gene therapy exhibition at the ExCel Centre.Among […]
The Unusual Suspects: rare disease in everyday medicine
emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]