Paediatric Academic Day 2025: Health inequities in the spotlight! At Medics for Rare Disease we have a vision of equitable healthcare for everybody, regardless of the prevalence of their health […]
Medics for Rare Disease has been tasked with making recommendations to the Department of Health and Social Care about ‘healthcare professional awareness’ of rare disease. We need your input and […]
I had the amazing opportunity to attend the National Organization for Rare Diseases (NORD) Breakthrough Summit taking place in Washington, DC, USA between 20-22nd of October this year to present […]
Medics4RareDiseases and FOP Friends, in collaboration with the Hunterian Museum at the Royal College of Surgeons of England, hosted an evening reception for healthcare professionals, examining the contributions of patients […]
On the 21st February our annual event The Unusual Suspects – Rare Disease in Everyday Medicine took place at The Royal Society of Medicine. The aim of the meeting was […]
Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]
M4RD’s Ambassadors come together for the first time In September 2022 we welcomed our new cohort of ambassadors for 2022/23 which included 10 Clinicians, 5 Medical Students and 4 Patient […]
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
How can pharmaceutical companies ensure that patients are actively involved at every stage ofdrug development? Last week I attended the Patient Centricity & Engagement conference in London to find out […]
Hello, Nadine here, I’m back again! This time it’s to talk about rare disease policy. This month I attended Europe’s largest cell and gene therapy exhibition at the ExCel Centre.Among […]