Pompe Preceptorship
Mercure Hotel Manchester Manchester Piccadilly, Manchester, United KingdomPompe Preceptorship, hosted by Mark Holland from the Metabolic Unit, Manchester
10 events found.
Rare Diseases
Rett UK Regional Professionals Day
THE HUB Easton Street, High Wycombe, Buckinghamshire, United KingdomGreat opportunity to learn more about Rett syndrome and how to support people with the disorder
Free
A Puff of Smoke Book Launch and Exhibition
The Centre for Better Health 1A Darnley Road, London, United KingdomJoin Sarah Lippett to celebrate the publication of A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London.
Free
A Puff of Smoke Talk and Workshop w/ author and artist Sarah Lippett
The Centre for Better Health 1A Darnley Road, London, United KingdomJoin author and artist Sarah Lippett to explore the power of sequential narrative.
£5.98 – £7.50
Rare disease spotlight: Aspergillosis
Barts & The London School of Medicine - Garrod Building London, United KingdomShining the light on Aspergillosis
Drug Repurposing for Rare Diseases 2020 Conference
America Square Conference Centre 17 America Square, London, United KingdomFindacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
£37.39 – £94.59
The 10th European Conference on Rare Diseases & Orphan Products (ECRD)
ONLINEPeople living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
to be reviewed
COVID-19 and rare diseases: Risks and opportunities posed by the pandemic
WebinarThis unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential […]
Free webinar
Vasculitis: registries, pathways and therapeutics
This free 2 day webinar will provide a comprehensive update on all UKIVAS group activities and plans for the future, along with recent clinical and research updates in vasculitis. This is a multidisciplinary webinar where adult and paediatric vasculitis management will be examined. The themes highlighted are relevant to; renal, rheumatology, respiratory, ENT, dermatology and […]
FREE
Virtual Rare Disease Showcase
Findacure's Rare Disease Showcase series is a celebration of rare disease projects around the UK Findacure's Virtual Showcase is designed to be a unique event, with interactive sessions taking place over a three-day period, including conversations on telemedicine, artificial intelligence, patient group innovations, and the impact of Covid-19 on rare diseases. Our online stage will […]
Free