Rett UK Regional Professionals Day
THE HUB Easton Street, High Wycombe, Buckinghamshire, United KingdomGreat opportunity to learn more about Rett syndrome and how to support people with the disorder
Great opportunity to learn more about Rett syndrome and how to support people with the disorder
Join Sarah Lippett to celebrate the publication of A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London.
Join author and artist Sarah Lippett to explore the power of sequential narrative.
Shining the light on Aspergillosis
Findacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
People living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.
This unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants will hear about the short and long-term impact of shielding, consider how to best protect vulnerable populations in the future, and reflect on the potential […]
This free 2 day webinar will provide a comprehensive update on all UKIVAS group activities and plans for the future, along with recent clinical and research updates in vasculitis. This is a multidisciplinary webinar where adult and paediatric vasculitis management will be examined. The themes highlighted are relevant to; renal, rheumatology, respiratory, ENT, dermatology and […]
Findacure's Rare Disease Showcase series is a celebration of rare disease projects around the UK Findacure's Virtual Showcase is designed to be a unique event, with interactive sessions taking place over a three-day period, including conversations on telemedicine, artificial intelligence, patient group innovations, and the impact of Covid-19 on rare diseases. Our online stage will […]
FREE to attend, RAREfest20 is a full day Cambridge Rare Disease Network festival featuring interactive hands-on exhibits showcasing cool science, visionary technology, and pioneering organisations improving lives and bringing hope to those affected by rare diseases. Alongside the exhibition there'll be inspiring talks from experts and powerful patient voices, rare disease inspired art and films.