Daring to Think Rare: Reflections on My First Year as an Ambassador
It’s the end of my first year as an MfRD Ambassador, and I had the pleasure of celebrating it with the incredible Lunch & Learn! On arrival, I was greeted […]
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Beyond the Diagnosis: Mental Health and Rare Diseases
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
Greetings from the South, Reunions in the ‘North’, and The Power of Yet
Joining M4RD: A New Chapter as Strategic Operations Manager by Katie Sutton I recently joined M4RD as the new Strategic Operations Manager, and it’s been an interesting journey so far! […]
Are you ready to become a Rare Disease Ambassador?
Apply to be an M4RD Ambassador today… This is the moment you’ve been waiting for! Our popular and successful Ambassador Programme is now open to new applications, giving you the […]
Emotive and M4RD shortlisted for medical comms award!
M4RD is thrilled to shine a spotlight on our very special, five year partnership with emotive agency, as it has been shortlisted for a prestigious medical communications award! The team […]
STUDY IDENTIFIES RED FLAGS OF RARE DISEASE
Published in Orphanet Journal of Rare Diseases 21st May 2024: A new study, by Medics4RareDiseases, has identified seven ‘red flags, or clinical clues, that point to a patient having an […]
My time working for Medics4RareDiseases by Nadine Jefferies
After an incredible year and half, I have decided to move on from working at Medics4RareDiseases. But before I go, I’d like to look back on my time at this […]
Words Matter by Emily Livesey
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
M4RD are proud sponsors of T-KASH
Medics4RareDiseases are proud to be a bronze sponsor for T-KASH: Transition – Knowledge and Skills in Healthcare, a new tool designed to support young people with rare and genetic conditions […]
Empowering Families and Healthcare Professionals: A Look at the Resources Offered by Unique
Who are Unique? In the world of rare genetic conditions, understanding the intricacies of a specific disorder and accessing comprehensive information can be a daunting task for families and healthcare […]