Mystery Disease Monday is back #MDM
You spoke and we listened!! We are pleased to announce that Mystery Disease Monday will be back from Monday 17th May and to mark the start of National Eosinophilic Awareness […]
Jo McPherson
About Jo McPherson
Posts by Jo McPherson:
Rare Disease 101 fills the gap in medical education
Written by Dr Thomas Dunne, Trust Grade SHO in Paediatrics & M4RD Clinical Ambassador When reflecting on your experiences of undergraduate medical education on rare diseases, what comes to mind? […]
Making the Unseen Seen: Rare disease and the lessons learned from the COVID-19 pandemic
At the beginning of the COVID-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment. The group became known as ARDEnt […]
The M4RD team has just got bigger…
We’re excited to announce the appointment of our new part-time Operations and Finance Manager, Jo McPherson. Many of you will already recognise the name because Jo has been helping out Lucy […]
After 31 years with the BPSU Richard Lynn has retired!
Richard Lynn has retired after 31 years as the British Paediatric Surveillance Unit’s Scientific Coordinator and M4RD would like to thank him for advocating for those affected by rare disease. Richard started […]
I am number 17 campaign
This week changemaker David Rose speaks with our CEO Lucy about what it is like to live with the ultra-rare disease occipital horn syndrome, advocacy efforts and the I am number 17 […]
Rare Disease 101 is LIVE!
Rare Disease 101 Today Medics4RareDiseases has launched its online, interactive e-learning platform dedicated to teaching medics the fundamentals of rare disease and help them manage both their undiagnosed and diagnosed […]
Rare Disease 101 Sneak-Peek
Rare Disease 101 Today Medics4RareDiseases has realised a long-term goal: we have created Rare Disease 101 training for medical professionals. RD101 is an online and interactive education module created for […]
A day in the life of a medical student during the pandemic
Written by Chloe Bell, a fourth-year medical student at the University of Manchester Hi, my name is Chloe and I’m currently a fourth-year medical student at the University of Manchester. […]
Rare Disease – Not Just For Specialists
Written by Dr Katherine Colvin, European Medical Journal (EMJ) Rare diseases are individually rare, but collectively common. Rare diseases, each occurring in fewer than 1 in 2,000 people (EU definition1), affect 3.5–5.9% […]