Inaugural Rare Disease Nurse Network Webinar
ONLINEAre you a nurse/allied health professional working or interested in rare diseases? RDNN are building a community to support each other, share stories and learn from their peers to improve […]
10 events found.
Rare Diseases
Ensuring inclusive communications around genetics
ONLINEGenetics is complex, and talk of genetics, and even science, can turn many people off from engaging with clinicians or self-management of their conditions. Findacure is teaming up with charity […]
RCPH-BPSU series: Bechet’s Syndrome in children and young people
ONLINEBehçet’s syndrome is a rare multi-system inflammatory condition characterised by recurrent oral ulceration, genital ulceration, eye and skin involvement. In this webinar, the panel of speakers will present the findings […]
Mobilising pathways to accommodate new transformative treatments – using CF as a case study
ONLINEJoin OPEN HEALTH for a live webinar exploring the journey of RARE pathway transformation and the introduction of disease-modifying treatments as part of their Rare Thoughts and Outcomes series. Learn from the experiences of patients, parents, and physicians about how cystic fibrosis pathways are rapidly adapted and what learnings can be applied to other rare […]
Precision Medicine & Rare Disease
ONLINEIf you work in rare diseases or rare disorders, this conference is one you cannot miss. Come and hear talks and discussions by leaders in academia, biotech, pharmaceuticals, diagnostics, clinical […]
Drug Repurposing for Rare Diseases 2021
ONLINEFindacure’s Drug Repurposing for Rare Diseases Conference is back for an eighth year, and this time, it’s gone virtual! Naturally, this year’s conference will be a little different. COVID-19 has […]
EURORDIS Summer School
ONLINEEURORDIS Summer School aims to provide rare disease patient advocates with the knowledge and skills needed to become experts in medicines research and development. Since 2015, researchers are also welcome […]
Diverse Discoveries and Inclusive Insights Conference
ONLINECome together with like minded professionals who have a passion to ensure no one is left behind. Hear from organisations who are leading the way in engaging with our diverse […]
The genetics of primary care
ONLINEThe eleventh webinar in The genetics of… series from the Royal Society of Medicine. This webinar will equip attendees with the clinical skills required to help patients presenting with common genetic situations. Frequent […]
Afternoon Tea with the Childhood Tumour Trust
Danesfield House Henley Road, Marlow, Buckinghamshire, United KingdomWant to learn more about Neurofibromatosis Type 1, with a focus on diagnosis and care? Come along to Danesfield House at 1.30pm on Friday 6th August for Afternoon Tea with […]