Loeys-Dietz Syndrome Foundation Canada

 Patient Groups / by Eleanor Churchill / 611 views / Popular

The Loeys-Dietz Syndrome Foundation Canada is a Canadian charitable organization dedicated to the promotion of research, awareness, education and support for those affected by Loeys-Dietz Syndrome (LDS).

If you are affected by Loeys-Dietz syndrome, you can contact us at info@loeysdietzcanada.org.

For the LDS Community: We provide individualized, emotional, and practical peer support, as well as access to our Resource Directory, a growing library of hundreds of medical, psychological, educational, financial, and other resources.

In Research: We support and fund essential research, patient registries, and an extensive research database of Loeys-Dietz syndrome research.

In Education and Awareness: We sponsor, present at, and host events for medical professionals and patients, regularly publish educational materials, and partner with organisations internationally.

Contact details

 ***** https://loeysdietzcanada.org