Posted 1 week ago by RACHEL RIMMER
RACC – UK is the UK’s charity for patients and families suffering from #Rare Autoinflammatory conditions. We...
Patient Groups / UK / 11 views
Posted 2 months ago by Liz Ebbage
Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for...
Patient Groups / 77 views
Posted 2 months ago by Sam Fillingham
Poland Syndrome is characterized by an underdeveloped or absent chest muscle on one side of...
Patient Groups / North West / 98 views
Posted 5 months ago by Nuala Summerfield
The Schinzel-Giedion Syndrome Foundation is a registered UK charity (Registered Charity Number 1186327) established in...
Patient Groups / UK / 264 views
Posted 9 months ago by Jo McPherson
Designed to provide easily accessible and up to date information for anyone affected by genetic,...
Patient Groups / 383 views
Posted 11 months ago by Daniel Lewi
The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi after their...
Patient Groups / UK / 571 views
Posted 1 year ago by Claire Hennessey
Max Appeal is the UK registered charity supporting families affected by 22q11 Syndromes. The Consensus...
Patient Groups / UK / 446 views
Pompe Support Network
PopularPosted 1 year ago by Allan Muir
Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare...
Patient Groups / UK / 686 views
FOP Friends
PopularPosted 1 year ago by Helen Bedford-Gay
FOP Friends is the UK's charity dedicated to supporting people who have been diagnosed with...
Patient Groups / UK / 706 views
The Gauchers Association
PopularPosted 1 year ago by Sarah Allard
The Gauchers Association provides support and advice to patients and their families, supports research, and...
Patient Groups / UK / 533 views
Wolfram Syndrome UK (WSUK)
PopularPosted 1 year ago by Tracy Lynch
We are the only charity and support group in the UK for individuals and families...
Patient Groups / UK / 623 views
NAIT Babies
PopularPosted 1 year ago by danjeffries
Naitbabies are a UK registered patient organisation run by families with Fetal and neonatal alloimmune...
Patient Groups / UK / 675 views
Ataxia UK
PopularPosted 1 year ago by Emily Cutting
Ataxia is an umbrella term for a group of neurological disorders that affect balance, coordination...
Patient Groups / London / 693 views
Noonan Syndrome Association
PopularPosted 1 year ago by Ian Legg
The UK registered charity supporting individuals with Noonan Syndrome and other related Rasopathies. We provide...
Patient Groups / UK / 791 views
Posted 1 year ago by Allison Watson
Ring20 Research and Support UK CIO support and connect families, individuals and professionals around the...
Patient Groups / East of England / 698 views
Beat SCAD
PopularPosted 1 year ago by Debbie Oliver
Beat SCAD is a patient-led charity that aims to support Spontaneous Coronary Artery Dissection (SCAD)...
Patient Groups / UK / 972 views
DDX3X Support UK
PopularPosted 1 year ago by Maria Poole
DDX3X Support UK is a UK based information and support group for patients and families...
Patient Groups / UK / 797 views
Posted 2 years ago by Lucy McKay
Childhood Tumour Trust (CTT) is a growing charity whose aim is to provide support for...
Patient Groups / UK / 706 views
Findacure
PopularPosted 2 years ago by Lucy McKay
Findacure is a UK charity that is helping the rare disease community to drive research...
Patient Groups / East of England / 735 views