Rare Autoinflammatory Conditions Community - UK (RACC - UK)
RACC – UK is the UK’s charity for patients and families suffering from #Rare Autoinflammatory conditions.
We are led by patients, parents, carers and experienced medical professionals, in the fields of rheumatology, immunology and nephrology.
We also have several forums with over 400 members from the UK suffering from various #Rare Autoinflammatory conditions.
RIPAG members of the European Reference Network, Rare Primary Immunodeficiency, Autoinflammatory and Autoimmune (RITA) diseases. We are registered stakeholders for NHS Clinical Reference Groups relevant to Autoinflammatory conditions.
Patients in the UK with Autoinflammatory conditions have often endured a long delay to diagnosis which impacts on long-term health and quality of life.
Autoinflammatory conditions are #Rare genetic conditions which often leave patients feeling vulnerable and isolated with little support.