Eurordis Archives - Medics For Rare Disease

Eurordis

15th January 2026

European Conference on Rare Diseases & Orphan Products (ECRD 2026)

Jo McPherson ECRD 2026, Europe, Eurordis, Healthcare Policy, Hybrid Event, Medical Research, Orphan Products, patient advocacy, Rare Disease Conference, rare diseases

🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over […]

The rare disease patient journey in 2030

Thanks to the wonders of modern technology and an amazingly powerful online platform #ECRD2020 took place virtually on 14th & 15th May. The conference was organised to take place in […]