Skip to content


  1. Sarah Bicknell
    26th March 2019 @ 10:54 am

    As a mother of two children with a rare condition, CSID, it is so refreshing to see progress being made by highlighting and addressing all of these situations that we have encountered during a very frustrating path to diagnosis.
    We are warmed and reassured by the excellent educational drive and support you are giving to the medical community.

    • Lucy McKay
      1st April 2019 @ 9:50 am

      Hi Sarah, thank you so much for your positive feedback. It is great to know that the work of M4RD is making a difference to the lives of those living with rare diseases.