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64 item(s) found

AGS UK Network

Posted 2 years ago

Whether you’re directly affected by Aicardi-Goutières syndrome, are interested to know more about the condition...

Patient Groups / UK / 868 views / Popular

Addison’s disease Self-Help Group

Posted 2 years ago

Addison’s Disease is a rare endocrine condition where the adrenal glands cease to function, so that your...

Patient Groups / UK / 972 views / Popular

AcroTales

Posted 3 years ago

The idea for AcroTales came about after a project co-ordinated by Dan Jeffries, Tessa Murdoch and...

Learning Resources / 1106 views / Popular

A new approach to shortening the diagnostic odyssey

Posted 4 years ago

People living with rare disease often face a diagnostic odyssey, typically waiting years for a...

Journals and Articles / 1591 views / Popular

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M4RD

Medics4RareDiseases Ltd is a Charitable Incorporated Organisation (CIO) registered in England & Wales, Registered Charity Number 1183996. M4RD is registered at Companies House as a private company registered by guarantee without share capital, Company Number 11119884. Our registered address is: c/o Analogue Wonderland, Unit 12 Treadaway Technical Centre, Treadaway Hill, Loudwater, High Wycombe, HP10 9RS.

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AGS UK Network

Addison’s disease Self-Help Group

AcroTales

A new approach to shortening the diagnostic odyssey

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