Posted 5 months ago by Daniel Lewi

The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi after their...

 Patient Groups /  UK / 175 views

Posted 6 months ago by Tracy Lynch

This is a link to an article written for the Pediatric Research journal in USA...

 Journals and Articles /  UK / 189 views

Posted 6 months ago by Toby Borger

An online resource for all healthcare professionals who diagnose and/or treat ADA-SCID patients

 Learning Resources /  UK / 286 views

Max Appeal


Posted 6 months ago by Claire Hennessey

Max Appeal is the UK registered charity supporting families affected by 22q11 Syndromes. The Consensus...

 Patient Groups /  UK / 232 views

Posted 7 months ago by Tony Thornburn

Herewith the link to Behçet’s syndrome/disease Medical Factsheets, prepared by our leading clinicians: The...

 Factsheets /  UK / 254 views

Posted 8 months ago by Allan Muir

Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare...

 Patient Groups /  UK / 395 views

FOP Friends


Posted 9 months ago by Helen Bedford-Gay

FOP Friends is the UK's charity dedicated to supporting people who have been diagnosed with...

 Patient Groups /  UK / 423 views

Posted 9 months ago by Sarah Allard

The Gauchers Association provides support and advice to patients and their families, supports research, and...

 Patient Groups /  UK / 287 views

Posted 9 months ago by Tracy Lynch

We are the only charity and support group in the UK for individuals and families...

 Patient Groups /  UK / 328 views

NAIT Babies


Posted 10 months ago by danjeffries

Naitbabies are a UK registered patient organisation run by families with Fetal and neonatal alloimmune...

 Patient Groups /  UK / 425 views

Posted 11 months ago by Ian Legg

The UK registered charity supporting individuals with Noonan Syndrome and other related Rasopathies. We provide...

 Patient Groups /  UK / 455 views



Posted 11 months ago by Debbie Oliver

Beat SCAD is a patient-led charity that aims to support Spontaneous Coronary Artery Dissection (SCAD)...

 Patient Groups /  UK / 490 views

DDX3X Support UK


Posted 12 months ago by Maria Poole

DDX3X Support UK is a UK based information and support group for patients and families...

 Patient Groups /  UK / 494 views

Posted 1 year ago by Lucy McKay

Childhood Tumour Trust (CTT) is a growing charity whose aim is to provide support for...

 Patient Groups /  UK / 433 views