Posted 3 months ago by RACHEL RIMMER

RACC – UK is the UK’s charity for patients and families suffering from #Rare Autoinflammatory conditions. We...

 Patient Groups /  UK / 100 views

Posted 5 months ago by Mahvish Anwar

2nd Edition MarketsandMarkets Digital Event on Orphan Drugs and Rare Diseases scheduled to be held...

 Learning Resources /  UK / 174 views

Posted 8 months ago by Nuala Summerfield

The Schinzel-Giedion Syndrome Foundation is a registered UK charity (Registered Charity Number 1186327) established in...

 Patient Groups /  UK / 426 views

Posted 1 year ago by Daniel Lewi

The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi after their...

 Patient Groups /  UK / 689 views

Posted 1 year ago by Tracy Lynch

This is a link to an article written for the Pediatric Research journal in USA...

 Journals and Articles /  UK / 427 views

Posted 1 year ago by Toby Borger

An online resource for all healthcare professionals who diagnose and/or treat ADA-SCID patients  http://www.ada-scid.online/?utm_source=ADA-SCIDSocietybanner&utm_medium=banner&utm_campaign=Live&utm_content=

 Learning Resources /  UK / 590 views

Posted 1 year ago by Claire Hennessey

Max Appeal is the UK registered charity supporting families affected by 22q11 Syndromes. The Consensus...

 Patient Groups /  UK / 511 views

Posted 1 year ago by Tony Thornburn

Herewith the link to Behçet’s syndrome/disease Medical Factsheets, prepared by our leading clinicians: https://behcets.org.uk/information-for-patients/behcets-medical-factsheets/ The...

 Factsheets /  UK / 571 views

Posted 1 year ago by Allan Muir

Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare...

 Patient Groups /  UK / 796 views

Posted 1 year ago by Helen Bedford-Gay

FOP Friends is the UK's charity dedicated to supporting people who have been diagnosed with...

 Patient Groups /  UK / 800 views

Posted 1 year ago by Sarah Allard

The Gauchers Association provides support and advice to patients and their families, supports research, and...

 Patient Groups /  UK / 622 views

Posted 1 year ago by Tracy Lynch

We are the only charity and support group in the UK for individuals and families...

 Patient Groups /  UK / 700 views

Posted 2 years ago by danjeffries

Naitbabies are a UK registered patient organisation run by families with Fetal and neonatal alloimmune...

 Patient Groups /  UK / 768 views

Posted 2 years ago by Ian Legg

The UK registered charity supporting individuals with Noonan Syndrome and other related Rasopathies. We provide...

 Patient Groups /  UK / 911 views

Posted 2 years ago by Debbie Oliver

Beat SCAD is a patient-led charity that aims to support Spontaneous Coronary Artery Dissection (SCAD)...

 Patient Groups /  UK / 1078 views

Posted 2 years ago by Maria Poole

DDX3X Support UK is a UK based information and support group for patients and families...

 Patient Groups /  UK / 888 views

Posted 2 years ago by Lucy McKay

Childhood Tumour Trust (CTT) is a growing charity whose aim is to provide support for...

 Patient Groups /  UK / 818 views