Metabolic Support UK

 Patient Groups / by Jo McPherson / 96 views

Founded in 1981, Metabolic Support UK are the leading patient organisation for Inherited Metabolic Disorders (IMDs) and now support 20, 000 people affected by over 500 conditions. Working tirelessly, MSUK strive for excellence, innovation, and collaboration, ensuring the patient voice is heard across all levels of decision-making and policy implementation.
Patient centric, they provide individual support, build patient communities, and continually advocate for and empower those living with IMDs. As a progressive and collaborative organisation focused on the needs of the global rare disease community, MSUK are focused on collating and sharing relevant, usable data and insight for all IMD communities and stakeholders.

In July 2022 M4RD featured inherited metabolic disorders on #MysteryMonday, covering the basics to help medics and HCPs be more aware of these conditions. You can view the highlights here