Fragile X Society

 Patient Groups / by Jo McPherson / 60 views

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to families and professionals they work with. Working together with those affected, the Society supports an inclusive community of people who understand the specific needs of Fragile X.

Resources

Fragile X Syndrome: an introduction for families and healthcare providers.  ​Gives a brief description of Fragile X Syndrome: how it is caused, its effects, diagnostic tests, and the support and information available from the Fragile X Society.

https://www.fragilex.org.uk/general-resources

https://www.youtube.com/channel/UCN4rLHZk34OSqhWoinHAoig