The ED Society

 Patient Groups / Posted 3 weeks ago by Jo McPherson / 38 views

The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED). They work together with people who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED.

In April 2022 M4RD featured Ectodermal Dysplasia syndromes on #MysteryMonday, covering the basics to help medics and HCPs be more aware of these conditions.  You can view the highlights here.

Contact details

UK https://edsociety.co.uk