How can the NHS better serve you?
Medics for Rare Disease has been tasked with making recommendations to the Department of Health and Social Care about ‘healthcare professional awareness’ of rare disease. We need your input and […]
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Lunch and Learn look-back by Leah Brooksbank and Corrinne Hepworth
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
‘First Do No Harm’: Expert Reflections on a Rare Bone Disease’
JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]
Changing attitudes to blood and organ donation – Action on Blood’s film-screening at the House of Commons by Nadine Jefferies
We may have all heard the phrase “save a life, give blood”, but what we may not have heard about is the cultural disparity that exists in blood and organ […]
Look-back – The Unusual Suspects: Rare Disease in Everyday Medicine
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
The Importance of Centering the Patient by Nadine Jefferies
How can pharmaceutical companies ensure that patients are actively involved at every stage ofdrug development? Last week I attended the Patient Centricity & Engagement conference in London to find out […]
#showyourstripes for Rare Disease Day 2023 Gallery!
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and they all look fantastic! […]
7 Ways you can gear up for Rare Disease Day on February 28th 2023
Rare disease day highlights the impact of rare disease on millions of people all around the world. There’s loads of ways you can get involved to support this incredible day, […]
The Unusual Suspects: rare disease in everyday medicine
emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]
The rare disease patient journey in 2030
Thanks to the wonders of modern technology and an amazingly powerful online platform #ECRD2020 took place virtually on 14th & 15th May. The conference was organised to take place in […]