Launch at the House of Lords On 19th June 2025, I had the privilege of attending an important event at the House of Lords to mark World Sickle Cell Day. […]
Medics for Rare Disease has been tasked with making recommendations to the Department of Health and Social Care about ‘healthcare professional awareness’ of rare disease. We need your input and […]
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]
We may have all heard the phrase “save a life, give blood”, but what we may not have heard about is the cultural disparity that exists in blood and organ […]
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
How can pharmaceutical companies ensure that patients are actively involved at every stage ofdrug development? Last week I attended the Patient Centricity & Engagement conference in London to find out […]
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and they all look fantastic! […]
Rare disease day highlights the impact of rare disease on millions of people all around the world. There’s loads of ways you can get involved to support this incredible day, […]
emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]