Daring to Think Rare: Reflections on My First Year as an Ambassador
It’s the end of my first year as an MfRD Ambassador, and I had the pleasure of celebrating it with the incredible Lunch & Learn! On arrival, I was greeted […]
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Salivary Gland Cancer Day: One Community, One Cause. Standing together in Solidarity for Positive Change.
What is Salivary Gland Cancer? Salivary gland cancers are rare with only 0.3% of cancers globally being salivary gland cancers. They can affect the salivary glands (in the mouth) and […]
Turning Data into Change: Reflections from the NHS RHO Launch of the Sickle Cell Comparative Review
Launch at the House of Lords On 19th June 2025, I had the privilege of attending an important event at the House of Lords to mark World Sickle Cell Day. […]
Our ambassador annual meet up!
Last month was the Medics for Rare Disease Ambassador’s annual in-person meet up. Ambassadors came together from across the UK to share experiences and attend a number of workshops. Some […]
How can the NHS better serve you?
Medics for Rare Disease has been tasked with making recommendations to the Department of Health and Social Care about ‘healthcare professional awareness’ of rare disease. We need your input and […]
Lunch and Learn look-back by Leah Brooksbank and Corrinne Hepworth
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
‘First Do No Harm’: Expert Reflections on a Rare Bone Disease’
JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]
Changing attitudes to blood and organ donation – Action on Blood’s film-screening at the House of Commons by Nadine Jefferies
We may have all heard the phrase “save a life, give blood”, but what we may not have heard about is the cultural disparity that exists in blood and organ […]
Look-back – The Unusual Suspects: Rare Disease in Everyday Medicine
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
The Importance of Centering the Patient by Nadine Jefferies
How can pharmaceutical companies ensure that patients are actively involved at every stage ofdrug development? Last week I attended the Patient Centricity & Engagement conference in London to find out […]