Rare Disease Action Plan 2022 – focus on priority 2, action 7
In my last post I introduced some of M4RD’s initial thoughts on the Rare Diseases Action Plan 2022 Action 6. Now I’d like to continue exploring Priority 2; ‘increasing awareness […]
In my last post I introduced some of M4RD’s initial thoughts on the Rare Diseases Action Plan 2022 Action 6. Now I’d like to continue exploring Priority 2; ‘increasing awareness […]
M4RD is delighted to announce that we will be hosting an interactive virtual event exclusively for medical students wishing to learn more about complex communication skills. This event is initiated […]
Ehlers Danlos Syndrome (EDS) refers to a group of conditions that affects connective tissues, which includes skin, bones, blood vessels and many other organs. Symptoms of Ehlers Danlos Syndrome can […]
Last Monday I attended a reception at the House of Commons to celebrate the 40th anniversary of the Society for Mucopolysaccharide Disease, or MPS. MPS is a member of the […]
Medics4RareDiseases (M4RD) is happy to announce it has collaborated with Bionical Emas, a global Contract Research Organisation, to launch new online training for healthcare professionals. The mini-module is comprised of […]
Fibular Hemimelia is a rare congenital condition characterised by the complete or partial absence of the fibula bone. It is the same condition which afflicted athletes Aimee Mullins and Oscar […]
Spring is in the air and the team at M4RD have been reflecting on what has been a HUGE first quarter for us. Most notably, we have grown. Melissa, our […]
Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease ally! About our programme Our ambassador programme […]
The Rare Disease Podcast 4 Medics has launched! Each week we will bring you interviews with people from across the rare disease and medical world. We will be looking at […]
On Thursday 27 May 2021 Sondra Butterworth, CEO of RareQoL and founder of the #WhoseVoice campaign, and Lucy McKay from M4RD hosted an engagement session on the UK Rare Diseases […]