Mainstream media doesn’t often feature rare conditions, but when it does, it makes an impact! Recently, two ambassadors from Medics for Rare Disease – Charlotte Chapman-Hart and Zainab Alani – […]
Today the BBC featured our Ambassador Charlotte Chapman-Hart, sharing a powerful first‑hand account of life with a rare condition. In a candid interview with investigative reporter Nicola Gilroy, Charlotte described […]
Mystery Monday is BACK and this week we are focusing on Familial Intracranial Aneurysms! Thank you so much to HBA Support for the fantastic resources! Be sure to stay in […]
M4RD is delighted to announce that we will be hosting an interactive virtual event exclusively for medical students wishing to learn more about complex communication skills. This event is initiated […]
Medics4RareDiseases (M4RD) is happy to announce it has collaborated with Bionical Emas, a global Contract Research Organisation, to launch new online training for healthcare professionals. The mini-module is comprised of […]
The idea behind Rare Disease 101 When the idea of Rare Disease 101 was first mooted by Lucy McKay, my (slightly wonky) heart skipped a beat. I had been a […]
We would like to thank all our sponsors and donors for their generous support of M4RD’s 2021 work programme that includes further development of Rare Disease 101 and gathering data […]
Written by Dr Thomas Dunne, Trust Grade SHO in Paediatrics & M4RD Clinical Ambassador When reflecting on your experiences of undergraduate medical education on rare diseases, what comes to mind? […]
Rare Disease 101 Today Medics4RareDiseases has launched its online, interactive e-learning platform dedicated to teaching medics the fundamentals of rare disease and help them manage both their undiagnosed and diagnosed […]
Written by Dr Lucy McKay, CEO of Medics4RareDiseases The new UK Rare Diseases Framework has identified four key priority areas for addressing the challenges faced by those living with a […]