The CATS Foundation supports families affected by Tay-Sachs and Sandhoff disease.
The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi. Their daughter Amelie was diagnosed with Tay-Sachs at fifteen months of age in March 2011 and at the time there was no UK based charity dedicated to providing support for families affected by Tay-Sachs or Sandhoff disease. The CATS Foundation’s main focus is supporting families affected by Tay-Sachs and Sandhoff whilst also raising awareness of the diseases.
In January 2022 M4RD featured Tay-Sachs and Sandhoff disease on #MysteryMonday, covering the basics to help medics and HCPs be more aware of this condition. You can view the highlights here.