Wolfram Syndrome UK

 Patient Groups / by Jo McPherson / 936 views / Popular

Wolfram Syndrome UK (WSUK) is the only charity and website in the UK for this condition.

Wolfram Syndrome (WS) is a progressive neurodegenerative disorder characterized by onset of the following <16 years of age: Diabetes Insipidus; Diabetes Mellitus; Optic Atrophy; Deafness (DIDMOAD).

This video is made from the Mystery Monday assets M4RD created to give you some basics to help you be more aware of this condition.

Also check out our podcast ‘Not your usual diabetes’.

WSUK has also created a page for Medical Professionals. This page shares information that may prove helpful to you in caring for your WS patient, giving you more of an insight into the condition.

If you have diagnosed or are diagnosing a new patient with WS you will find the addresses for sending the child/family/adult to the relevant Wolfram Syndrome MDT service in Birmingham.