Mystery Disease Monday is back #MDM
You spoke and we listened!! We are pleased to announce that Mystery Disease Monday will be back from Monday 17th May and to mark the start of National Eosinophilic Awareness […]
You spoke and we listened!! We are pleased to announce that Mystery Disease Monday will be back from Monday 17th May and to mark the start of National Eosinophilic Awareness […]
Written by Dr Thomas Dunne, Trust Grade SHO in Paediatrics & M4RD Clinical Ambassador When reflecting on your experiences of undergraduate medical education on rare diseases, what comes to mind? […]
On this rare day take time to listen to a patient story and decide what you will do to make a difference to 300 million people living worldwide with a […]
Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.
RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease – mastery, opportunities and trends in the drug development process, healthcare and assistive technologies.
Today is Acromegaly Awareness Day 2018 so take this opportunity to brush up on signs, symptoms and management of this rare disease with a video from Dan Jeffries
Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of the survey is to find out what different rare diseases have in common during the time before diagnosis, a period often called ‘the diagnostic odyssey’. We need all UK based patient groups to take part. Read more to find out how…
VIDEO: Dan Jeffries, owner of two rare diseases and author of ‘Me, Myself & Eye’, interviewed M4RD Founder Lucy McKay. Watch the video to hear Dan’s interesting story of being diagnosed during an OSCE and to find out what M4RD is all about from the zebra’s mouth.
Another brilliant Rare Disease Day. This year we rebranded to Medics4RareDiseases!