Understanding Rare Disease: Communicating with Patients
Sign up to learn about the role of communication in rare disease from those affected directly, in an interactive FREE virtual event! About this event The event will kick off […]
rare disease
A REAL Rare Rollercoaster – from Paramedic to Patient
All aboard this ride! This week, on The Rare Disease Podcast 4 Medics, I had the honor to speak to a paramedic, turned patient. Marie was a practicing student paramedic […]
Online workshop: Understanding access and reimbursement
Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research […]
Curing with Kindness: Rare Childhood Brain Tumours (Pint of Science)
Researchers developing new treatments for children with rare brain tumours know that it’s not a case of treating children like tiny adults and that surviving the disease isn’t enough. Reducing […]
Not All Genes are Equal (Pint of Science)
Every person has two copies of each gene, one inherited from each parent. Most genes are the same in all people, but a small number of them are slightly different. […]
M4RD joins forces with Bionical Emas to launch new online training
Medics4RareDiseases (M4RD) is happy to announce it has collaborated with Bionical Emas, a global Contract Research Organisation, to launch new online training for healthcare professionals. The mini-module is comprised of […]
Fifty Years For a Fibular Hemimelia Diagnosis
Fibular Hemimelia is a rare congenital condition characterised by the complete or partial absence of the fibula bone. It is the same condition which afflicted athletes Aimee Mullins and Oscar […]
M4RD: Quarter 1 and Rare Disease Day 2022
Spring is in the air and the team at M4RD have been reflecting on what has been a HUGE first quarter for us. Most notably, we have grown. Melissa, our […]
Introducing Phase 3 of the #IAmNumber17 campaign
M4RD is proud to be collaborating on Phase 3 of the I am number 17 campaign in order to reach a vital audience who can make a huge difference to those […]
Become an M4RD Ambassador and a Rare Disease Ally
Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease ally! About our programme Our ambassador programme […]