Designed to provide easily accessible and up to date information for anyone affected by genetic,...
Patient Groups / 1944 views / Popular
CJD is one of a group of rare and invariably fatal diseases called prion diseases,...
Patient Groups / 1426 views / Popular
Alex TLC is a trusted and experienced organisation offering support and information for all those...
Patient Groups / London / 1381 views / Popular
The Fragile X Society aims to improve the lives of those affected by Fragile X...
Patient Groups / UK / 1246 views / Popular
The Loeys-Dietz Syndrome Foundation Canada is a Canadian charitable organization dedicated to the promotion of...
Patient Groups / 1181 views / Popular
We are the only organisation in the UK & Ireland dedicated to improving the lives...
Patient Groups / 1164 views / Popular
The Rare Diseases Society Nepal is the umbrella organisation for the rare disease patients of...
Patient Groups / 1114 views / Popular
A UK-registered charity, AMEND is a patient group providing information and support services to families...
Patient Groups / 1046 views / Popular
Alström Syndrome UK (ASUK) is a charity who provide information, support and advice for individuals...
Patient Groups / 1003 views / Popular
RACC – UK is led by an enthusiastic and motivated Board of Trustees with a...
Patient Groups / 915 views / Popular
The Neurofibromatosis Association, trading as Nerve Tumours UK, funds a unique Specialist Support Network to...
Patient Groups / 543 views / Popular
Alternating Hemiplegia of Childhood (AHC) UK in a UK charity for those living with or...
Patient Groups / 276 views