Posted 2 months ago by Jo McPherson

Designed to provide easily accessible and up to date information for anyone affected by genetic,...

 Patient Groups / 96 views

Posted 4 months ago by Daniel Lewi

The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi after their...

 Patient Groups /  UK / 135 views

Max Appeal


Posted 6 months ago by Claire Hennessey

Max Appeal is the UK registered charity supporting families affected by 22q11 Syndromes. The Consensus...

 Patient Groups /  UK / 193 views

Posted 8 months ago by Allan Muir

Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare...

 Patient Groups /  UK / 339 views

FOP Friends


Posted 8 months ago by Helen Bedford-Gay

FOP Friends is the UK's charity dedicated to supporting people who have been diagnosed with...

 Patient Groups /  UK / 360 views

Posted 9 months ago by Sarah Allard

The Gauchers Association provides support and advice to patients and their families, supports research, and...

 Patient Groups /  UK / 247 views

Posted 9 months ago by Tracy Lynch

We are the only charity and support group in the UK for individuals and families...

 Patient Groups /  UK / 293 views

NAIT Babies


Posted 10 months ago by danjeffries

Naitbabies are a UK registered patient organisation run by families with Fetal and neonatal alloimmune...

 Patient Groups /  UK / 373 views

Ataxia UK


Posted 10 months ago by Emily Cutting

Ataxia is an umbrella term for a group of neurological disorders that affect balance, coordination...

 Patient Groups /  London / 304 views

Posted 10 months ago by Ian Legg

The UK registered charity supporting individuals with Noonan Syndrome and other related Rasopathies. We provide...

 Patient Groups /  UK / 391 views

Posted 11 months ago by Allison Watson

Ring20 Research and Support UK CIO support and connect families, individuals and professionals around the...

 Patient Groups /  East of England / 336 views



Posted 11 months ago by Debbie Oliver

Beat SCAD is a patient-led charity that aims to support Spontaneous Coronary Artery Dissection (SCAD)...

 Patient Groups /  UK / 432 views

DDX3X Support UK


Posted 11 months ago by Maria Poole

DDX3X Support UK is a UK based information and support group for patients and families...

 Patient Groups /  UK / 437 views

Posted 12 months ago by Lucy McKay

Childhood Tumour Trust (CTT) is a growing charity whose aim is to provide support for...

 Patient Groups /  UK / 375 views



Posted 12 months ago by Lucy McKay

Findacure is a UK charity that is helping the rare disease community to drive research...

 Patient Groups /  East of England / 411 views