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Alternating Hemiplegia of Childhood (AHC) UK in a UK charity for those living with or...

 Patient Groups / 285 views

The Neurofibromatosis Association, trading as Nerve Tumours UK, funds a unique Specialist Support Network to...

 Patient Groups / 549 views / Popular

RACC – UK is led by an enthusiastic and motivated Board of Trustees with a...

 Patient Groups / 917 views / Popular

Alström Syndrome UK (ASUK) is a charity who provide information, support and advice for individuals...

 Patient Groups / 1010 views / Popular

The Rare Diseases Society Nepal is the umbrella organisation for the rare disease patients of...

 Patient Groups / 1123 views / Popular

CJD is one of a group of rare and invariably fatal diseases called prion diseases,...

 Patient Groups / 1435 views / Popular

A UK-registered charity, AMEND is a patient group providing information and support services to families...

 Patient Groups / 1048 views / Popular

The Loeys-Dietz Syndrome Foundation Canada is a Canadian charitable organization dedicated to the promotion of...

 Patient Groups / 1187 views / Popular

We are the only organisation in the UK & Ireland dedicated to improving the lives...

 Patient Groups / 1171 views / Popular

Alex TLC is a trusted and experienced organisation offering support and information for all those...

 Patient Groups /  London / 1385 views / Popular

Designed to provide easily accessible and up to date information for anyone affected by genetic,...

 Patient Groups / 1947 views / Popular