M4RD is proud to be collaborating on Phase 3 of the I am number 17 campaign in order to reach a vital audience who can make a huge difference to those living with undiagnosed rare conditions – healthcare professionals!
Rare Disease 101
Phase 3 is all about asking HCPs to help #FindThe1In17 by considering rare disease for every unsolved illness they see. We’re reaching out to healthcare professionals to share information on rare disease and to take pare in Rare Disease 101, our fast, free online platform that provides simple information and case-study led education to help Find the 1 in 17.
While 1 in 17 people are affected by rare diseases and countless healthcare professionals are essential in treating and supporting them, it takes just one person to think differently which could lead to an accurate diagnosis and help improve someone’s life dramatically.
That one person could be you…
RD101 was created by experts from the rare disease community who understand the medical education system and the high daily pressures that HCPs face and will support you to:
- recognise when someone might have an undiagnosed rare disease;
- quantify the cost of being undiagnosed and the benefits of having a diagnosis;
- appreciate the impact of having a rare disease on the patient and their family;
- understand how you can facilitate the patient’s journey through the healthcare system
We’re also excited that one of our friends and former medic, Dr Shanali Perera, has created a brand-new piece of art which showcases rare disease from an HCP perspective.
On average, it can take 4-5 years to receive an accurate diagnosis of rare disease¹ and the time spent waiting for a diagnosis is not only difficult physically, but also mentally. In my case, I was training as a rheumatologist when I first started to experience symptoms, so it was a very strange experience for me to personally be going through the journey of the condition I was specialising in. I was treating patients with vasculitis and seeing their everyday struggles. And suddenly I was living itDr Shanali Perera
Make sure to check back on the website over the next few weeks to watch this artwork develop.
The I Am Number 17 campaign was initiated and funded by Takeda.