Young People’s Genomics Café
Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Chromosomes! Dr Andrew Fry, Clinical Senior Lecturer in […]
Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Chromosomes! Dr Andrew Fry, Clinical Senior Lecturer in […]
We are M4RD and we #daretothinkrare Medics4RareDiseases is a registered charity started by medics, for medics! In fact, M4RD started out as a university society at Barts & The London. […]
Medics4RareDiseases has been accredited as a Living Wage Employer. Our Living Wage commitment will see everyone working at M4RD receive a minimum hourly wage of £9.90 in the UK or […]
We are delighted to announce our 10th annual symposium and, for the first time since 2020, it’s returning live and in-person! SAVE THE DATE… Join us on Wednesday 15th February […]
Last week our CEO and trustees met for M4RD’s annual strategy meeting in Gloucestershire. This was an opportunity to reflect on our progress over the last 12 months and to […]
This is the third instalment of M4RD’s comments on the English Rare Diseases Action Plan. I will now discuss Action 8; Extend the remit of the Genomics Education Programme to […]
In my last post I introduced some of M4RD’s initial thoughts on the Rare Diseases Action Plan 2022 Action 6. Now I’d like to continue exploring Priority 2; ‘increasing awareness […]
M4RD is delighted to announce that we will be hosting an interactive virtual event exclusively for medical students wishing to learn more about complex communication skills. This event is initiated […]
Ehlers Danlos Syndrome (EDS) refers to a group of conditions that affects connective tissues, which includes skin, bones, blood vessels and many other organs. Symptoms of Ehlers Danlos Syndrome can […]
Last Monday I attended a reception at the House of Commons to celebrate the 40th anniversary of the Society for Mucopolysaccharide Disease, or MPS. MPS is a member of the […]