Daring to Think Rare: Reflections on My First Year as an Ambassador
It’s the end of my first year as an MfRD Ambassador, and I had the pleasure of celebrating it with the incredible Lunch & Learn! On arrival, I was greeted […]
It’s the end of my first year as an MfRD Ambassador, and I had the pleasure of celebrating it with the incredible Lunch & Learn! On arrival, I was greeted […]
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
Published in the Orphanet Journal of Rare Diseases Medics4RareDiseases is proud to announce another publication within the Orphanet Journal of Rare Diseases! The study evaluates Rare Diseases 101, an online […]
JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]
Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]
Dr Lauren Ferretti is a paediatric registrar in London with a life-long commitment to charity fundraising and an interest in genetics and whole genome sequencing. Through working with M4RD as […]
We are M4RD and we #daretothinkrare Medics4RareDiseases is a registered charity started by medics, for medics! In fact, M4RD started out as a university society at Barts & The London. […]
This is the third instalment of M4RD’s comments on the English Rare Diseases Action Plan. I will now discuss Action 8; Extend the remit of the Genomics Education Programme to […]
In this post Emma will focus on Action 6 of the England Rare Disease Action Plan; develop an innovative digital educational resource. This is the first action listed in the Plan […]
In my last post I introduced some of M4RD’s initial thoughts on the Rare Diseases Action Plan 2022 Action 6. Now I’d like to continue exploring Priority 2; ‘increasing awareness […]