One doctor’s diagnostic odyssey
Doctors are highlighting the serious impact of diagnostic delay on individuals and their families living with rare conditions. Bringing the ‘Five Year Wait’ to life Today Medics for Rare Disease […]
Doctors are highlighting the serious impact of diagnostic delay on individuals and their families living with rare conditions. Bringing the ‘Five Year Wait’ to life Today Medics for Rare Disease […]
Sending a huge thank you to all of you who helped to make Rare Disease Day 2026 so incredible. Once again you have overwhelmed us with our support, your creativity […]
Happy Rare Disease Day everyone! We have been astounded by all of the engagement we have received for this year’s campaign already. Don’t forget to post your stripy sock photos […]
Medics for Rare Disease’s new, ultra-compact training video is now available to watch here. In the run-up to Rare Disease Day, 28th February, we are striving to get the video […]
26 January 2026: Medics for Rare Disease today announced the launch of a mini training video that will help HCPs become more ‘rare aware’ in five minutes. Since 2022, the […]
Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease, and to take one small action that can […]
Get ready to #ShowYourStripes February 28th may seem like a long way off but behind the scenes, Medics for Rare Disease staff are deep in planning mode! It will be […]
It’s the end of my first year as an MfRD Ambassador, and I had the pleasure of celebrating it with the incredible Lunch & Learn! On arrival, I was greeted […]
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
Published in the Orphanet Journal of Rare Diseases Medics4RareDiseases is proud to announce another publication within the Orphanet Journal of Rare Diseases! The study evaluates Rare Diseases 101, an online […]