In January, 2018, Mila became the first person in the world to receive a drug customized to just one person named Milasen. Despite losing a lot before beginning treatment, Mila was given an unprecedented second chance at life. Mila’s fight was not in time for her, but her story is now giving enormous hope to children across rare diseases that otherwise would have none. The video is shared by Mila’s Miracle Foundation – visit their website to read more about the life of a mother fighting for her daughter, Mila who was diagnosed with Batten Disease.
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