Jo McPherson

About Jo McPherson

Posts by Jo McPherson:

26th October 2021

Whose Voice Is It Anyway?

Jo McPherson M4RD, Patient Advocacy Groups, Report, UK Rare Disease Framework M4RD, NHS England & Improvement, NHSE&I, patient voice, RareQOL, UK Rare Disease Framework, WhoseVoice

On Thursday 27 May 2021 Sondra Butterworth, CEO of RareQoL and founder of the #WhoseVoice campaign, and Lucy McKay from M4RD hosted an engagement session on the UK Rare Diseases […]

29th September 2021

Not your usual heart attack

Jo McPherson daretothinkrare, disease, interview, medicalstudent, patient, raredisease, Uncategorised diagnosis, Heart, medical education, patient voice, rare disease, SCAD, Spontaneous Coronary Artery Dissection

Heart attacks may not be rare but SCAD is! Today is World Heart Day and although heart attacks may not be rare, there are other causes of heart attacks that […]

15th September 2021

The impact of living with Myotonic Dystrophy

Jo McPherson disease, Genetics, interview, patient, raredisease diagnosis, dystrophy, genetic, MD, medical education, muscular, myotonic, Myotonic Dystrophy, patient voice, rare disease

Doctors are patients too Genevieve Allum is a 34 year old GP who specialises in Dementia and lives on South Coast with her partner. Genevieve was diagnosed with Myotonic Dystrophy […]

18th August 2021

A month (or three!) in the life of… M4RD’s Operations & Finance Manager

Jo McPherson M4RD M4RD, Operations & Finance Manager

At the end of April, M4RD appointed Jo McPherson as its new Operations & Finance Manager. In fact 2021 has been an exciting year for M4RD as we’ve grown our […]

3rd August 2021

Meet our Medical Communications Officer

Jo McPherson Job, Mystery Disease Monday M4RD, Medical Communications Officer, team

As the M4RD team continues to grow, we’re excited to announce the appointment of our new part-time Medical Communications Officer, Dr Emma Huskinson. As a doctor, with a background in marketing and […]

25th June 2021

Reflections on rare diseases: state of the nation 2021

Jo McPherson daretothinkrare, disease, raredisease, Report Baroness Blackwood, Public policy projects, rare disease, reflections on rare diseases, Report, State of the nation

Starting a conversation Back in 2019, Baroness Blackwood spoke at the British Paediatric Surveillance Unit (BPSU) rare disease summer tea party where she stated “we need national debate on rare […]

11th June 2021

Working together to share our message #DareToThinkRare

Jo McPherson daretothinkrare, patient, Patient Advocacy Groups, raredisease collaboration, daretothinkrare, patient advocacy, patient advocates, patient groups, Patients

We believe that asking doctors to #DareToThinkRare is fundamental to improving the experience of all patients living with rare diseases. And to eliminating the diagnostic odyssey. Working together to share […]

2nd June 2021

Thank you to our sponsors for supporting our work programme

Jo McPherson daretothinkrare, Rare Disease 101, raredisease, sponsors collaboration, M4RD, medics4rarediseases, RD101, sponsors, work programme

We would like to thank all our sponsors and donors for their generous support of M4RD’s 2021 work programme that includes further development of Rare Disease 101 and gathering data […]

26th May 2021

M4RD is looking for a Medical Communications Officer!

Jo McPherson Job application, apply, job, medical communications, medical writer, vacancy

M4RD is hiring (again!) We’re looking for someone to become the part-time Medical Communications Officer for M4RD. The successful candidate will be responsible for communications that require a good understanding […]

20th May 2021

The Unusual Suspects: rare disease in everyday medicine

Jo McPherson conference, daretothinkrare, event, M4RD Events, Video collaboration, dare to think rare, emotive, M4RD, medical education, rare disease, royal society of medicine, the unusual suspects

emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]