Posted 2 years ago by Tracy Lynch

We are the only charity and support group in the UK for individuals and families...

 Patient Groups /  UK / 716 views

Posted 3 months ago by Sophie Muir

Timothy Syndrome Alliance (TSA) is a registered UK charity (1185523) and patient support group. Our...

 Patient Groups / 84 views

Posted 8 months ago by Nuala Summerfield

The Schinzel-Giedion Syndrome Foundation is a registered UK charity (Registered Charity Number 1186327) established in...

 Patient Groups /  UK / 448 views

Posted 2 years ago by Sarah Allard

The Gauchers Association provides support and advice to patients and their families, supports research, and...

 Patient Groups /  UK / 645 views

Posted 1 year ago by Daniel Lewi

The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi after their...

 Patient Groups /  UK / 719 views

Posted 2 years ago by Allison Watson

Ring20 Research and Support UK CIO support and connect families, individuals and professionals around the...

 Patient Groups /  East of England / 823 views

Posted 4 months ago by RACHEL RIMMER

RACC – UK is the UK’s charity for patients and families suffering from #Rare Autoinflammatory conditions. We...

 Patient Groups /  UK / 125 views

Posted 1 year ago by Allan Muir

Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare...

 Patient Groups /  UK / 813 views

Posted 6 months ago by Sam Fillingham

Poland Syndrome is characterized by an underdeveloped or absent chest muscle on one side of...

 Patient Groups /  North West / 303 views

Posted 2 years ago by Ian Legg

The UK registered charity supporting individuals with Noonan Syndrome and other related Rasopathies. We provide...

 Patient Groups /  UK / 941 views

Posted 2 years ago by danjeffries

Naitbabies are a UK registered patient organisation run by families with Fetal and neonatal alloimmune...

 Patient Groups /  UK / 787 views

Posted 1 year ago by Claire Hennessey

Max Appeal is the UK registered charity supporting families affected by 22q11 Syndromes. The Consensus...

 Patient Groups /  UK / 531 views

Posted 6 months ago by Liz Ebbage

Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for...

 Patient Groups / 157 views

Posted 1 year ago by Jo McPherson

Designed to provide easily accessible and up to date information for anyone affected by genetic,...

 Patient Groups / 489 views

Posted 1 year ago by Helen Bedford-Gay

FOP Friends is the UK's charity dedicated to supporting people who have been diagnosed with...

 Patient Groups /  UK / 817 views

Posted 2 years ago by Lucy McKay

Findacure is a UK charity that is helping the rare disease community to drive research...

 Patient Groups /  East of England / 835 views

Posted 2 years ago by Maria Poole

DDX3X Support UK is a UK based information and support group for patients and families...

 Patient Groups /  UK / 908 views

Posted 2 years ago by Lucy McKay

Childhood Tumour Trust (CTT) is a growing charity whose aim is to provide support for...

 Patient Groups /  UK / 846 views

Posted 2 years ago by Debbie Oliver

Beat SCAD is a patient-led charity that aims to support Spontaneous Coronary Artery Dissection (SCAD)...

 Patient Groups /  UK / 1091 views

Posted 2 years ago by Emily Cutting

Ataxia is an umbrella term for a group of neurological disorders that affect balance, coordination...

 Patient Groups /  London / 818 views