Jo McPherson

About Jo McPherson

Posts by Jo McPherson:

7th January 2022

M4RD is looking for a Projects Assistant!

Jo McPherson Job application, apply, job, projects, vacancy

M4RD is growing… We’re looking for someone to fill the new role of Projects Assistant for M4RD. The role will involve supporting the CEO (and wider M4RD team) in the […]

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26th November 2021

Become an M4RD Ambassador and a Rare Disease Ally

Jo McPherson Ambassador, daretothinkrare, doctor, M4RD, medicalstudent, patient Ambassador, Clinical Ambassador, doctor in training, M4RD Ambassador, medical student, Patient Ambassador, rare disease

Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease ally! About our programme Our ambassador programme […]

11th November 2021

Tune in now to the Rare Disease Podcast 4 Medics

Jo McPherson M4RD, Podcast daretothinkrare, HCPs, interviews, M4RD, podcast, rare diseases, The Rare Disease Podcast 4 Medics

The Rare Disease Podcast 4 Medics has launched! Each week we will bring you interviews with people from across the rare disease and medical world. We will be looking at […]

26th October 2021

Whose Voice Is It Anyway?

Jo McPherson M4RD, Patient Advocacy Groups, Report, UK Rare Disease Framework M4RD, NHS England & Improvement, NHSE&I, patient voice, RareQOL, UK Rare Disease Framework, WhoseVoice

On Thursday 27 May 2021 Sondra Butterworth, CEO of RareQoL and founder of the #WhoseVoice campaign, and Lucy McKay from M4RD hosted an engagement session on the UK Rare Diseases […]

29th September 2021

Not your usual heart attack

Jo McPherson daretothinkrare, disease, interview, medicalstudent, patient, raredisease, Uncategorised diagnosis, Heart, medical education, patient voice, rare disease, SCAD, Spontaneous Coronary Artery Dissection

Heart attacks may not be rare but SCAD is! Today is World Heart Day and although heart attacks may not be rare, there are other causes of heart attacks that […]

15th September 2021

The impact of living with Myotonic Dystrophy

Jo McPherson disease, Genetics, interview, patient, raredisease diagnosis, dystrophy, genetic, MD, medical education, muscular, myotonic, Myotonic Dystrophy, patient voice, rare disease

Doctors are patients too Genevieve Allum is a 34 year old GP who specialises in Dementia and lives on South Coast with her partner. Genevieve was diagnosed with Myotonic Dystrophy […]

18th August 2021

A month (or three!) in the life of… M4RD’s Operations & Finance Manager

Jo McPherson M4RD M4RD, Operations & Finance Manager

At the end of April, M4RD appointed Jo McPherson as its new Operations & Finance Manager. In fact 2021 has been an exciting year for M4RD as we’ve grown our […]

3rd August 2021

Meet our Medical Communications Officer

Jo McPherson Job, Mystery Disease Monday M4RD, Medical Communications Officer, team

As the M4RD team continues to grow, we’re excited to announce the appointment of our new part-time Medical Communications Officer, Dr Emma Huskinson. As a doctor, with a background in marketing and […]

25th June 2021

Reflections on rare diseases: state of the nation 2021

Jo McPherson daretothinkrare, disease, raredisease, Report Baroness Blackwood, Public policy projects, rare disease, reflections on rare diseases, Report, State of the nation

Starting a conversation Back in 2019, Baroness Blackwood spoke at the British Paediatric Surveillance Unit (BPSU) rare disease summer tea party where she stated “we need national debate on rare […]

11th June 2021

Working together to share our message #DareToThinkRare

Jo McPherson daretothinkrare, patient, Patient Advocacy Groups, raredisease collaboration, daretothinkrare, patient advocacy, patient advocates, patient groups, Patients

We believe that asking doctors to #DareToThinkRare is fundamental to improving the experience of all patients living with rare diseases. And to eliminating the diagnostic odyssey. Working together to share […]